Hospice

You haven’t heard from me in a couple of weeks, because I’ve been dealing with some life-altering events, and therefore not motivated or even able to send up a post. Since I last wrote, my 98-year-old mother has had some horrific trauma over the past 2 weeks.

There are times when I feel more blind than usual, and when my mother was sent to the E.R., this was one of them. First, when I got the call from the assisted living home, I had to recruit someone to take me to meet Mom at the hospital. Fortunately, my son Steve was able to excuse himself from his daughter’s soccer game and sit with me for at least half the 8 hours we spent there. When he had to leave for a while, I thought I could handle everything, because Mom was sleeping off the morphene they gave her, and I was just waiting for the results of the tests they ran. But then the morphene wore off, Mom got cold, she had to go to the bathroom, and she was getting hungry, since she hadn’t eaten all day. Yet, nobody checked on us for over 3 hours. I searched around our little curtained off space for a blanket and found none. I had no idea where to find food, and since Mom couldn’t walk, it was impossible for me to help her with the bathroom. I had left Dora at home, knowing that it would be tight quarters, and I didn’t want to have to deal with a dog’s needs on top of everything else. So, I took my white cane out into the hallway and went searching for some help. When I finally got the attention of the nurse on Mom’s case, and I complained that we hadn’t seen anyone for hours, she said rather defensively that she had been around. But not once did she pop in to say a comforting word or ask if Mom needed anything. If I hadn’t been there to flag somebody down, my mother would have been ignored completely. Hospitals are the worst places to be when you are hurt or sick, and you are blind and hard of hearing. This is proof once again that if you have to go to the hospital, you must have an advocate with you.

Mom was back in the E.R. the next day, and again on Monday, Memorial Day, because of repeated falls. She was finally diagnosed with a fractured hip and a broken rib, and was admitted on Monday night. She spent the next 5 days in the hospital, where her care improved remarkably, especially when she was moved to palliative care for the last 3 of those days. Meanwhile, she was approved for Hospice Care. Most times, when people hear those words, they think of impending death and sorrowful hearts. My reaction was, Thank God for finally sending her the care she needs. While I was not actually the one who administered her meds, lifted her in and out of a wheelchair, cut up her food, changed her sheets, and cleaned up after accidents in the bathroom, I felt a huge burdon lifted from my shoulders. Since the trauma of that Memorial Day weekend, her physical and mental condition deteriorated so drastically that she became virtually helpless. She had to be fed, dressed, bathed, and everything else, as if she were an infant. If I had sight, I might have been able to do it, and I probably would have, because I know my mother did it for her mother, and although I did it for my babies as a blind mother, caring for an infant is not the same as caring for an elderly and frail person.

Although she does not qualify for 24/7 care, there are 4 people on her team, a nurse, an aid, a chaplain, and a social worker, who each check in on her regularly. My worries as the “designated daughter” have been lightened considerably. As her level of care increases, so does my peace of mind. With the onset of Alzheimer’s, her personality has changed. She’s more relaxed and accepting of help. I think she rather enjoys the extra attention. The smile on her face matches mine, as I witness the tender care of this Hospice team. Thanks be to God.

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5 thoughts on “Hospice

  1. You have all my prayers and thoughts. I’d say “Hang in thee,” but there’s nothing else you can do. I’d say “It gets better,” but it doesn’t. All i can say is that I’ve been where you are and I know it’s a really bad place, but sometimes, if you’re lucky, you get to show someone dear to you how much you love them.

  2. HI Mary!!

    It’s Sandie stopping in to say how sorry i am to hear about your mother… I wish that I were closer to give you a hand with the Hospice part of it…. I am a Hospice volunteer…. I am very appreciative of your descriptions of hospital vs Hospice care…. thanks for doing that… …and take care of you…. You cannot take care of her if you don’t take care of yourself first… love from Sandie

  3. Sending thoughts and prayers your way Mary. Keep on keepin’ on. Thank God your mom has you looking out for her.

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